Gluten-Free Simplicity

Useful Info, Tasty Anecdotes and Simple Recipes for Attaining Gluten-Free Simplicity

Posts Tagged ‘Discrimination’

Way #29: Accept the Basic Nature of those Gluten-Related Symptoms and Make Way Through the Societal Fog Toward Gluten-Free Simplicity

Posted by nepeht on December 21, 2008

Way #29: Accept the Basic Nature of those Gluten-Related Needs and Symptoms and Make Way Through the Societal Fog Toward Gluten-Free Simplicity.

  Let us try to think of a situation where Social Pressures kept us from doing what we needed to do regarding our Very Real Gluten-Related Issues or Symptoms. 

 What was it like?  Probably like many people — like me too, there are often regrets to deal with later due to earlier actions that were taken more in the interest of social norms than self.

I am Beautifully Unique like a Precious Orange Flower (c.2008, WTB)

I am Beautifully Unique like a Precious Orange Flower (c.2008, WTB)

  Here are a few ideas that might help one move more smoothly through these situations:

  1. Develop ways of quickly recognizing Gluten-Related Needs in given situations.
  2. Learn to rapidly recognize Gluten-Related Symptoms as soon as possible.
  3. Design and modify (as needed) a positive Gluten-Exposure prevention and recovery plan that works for you.
  4. Try to avoid situations where we are likely to be exposed to Gluten yet there is no foreseeable remedy or recovery plan.
  5. Actively learn from symptoms and situations that could not be avoided this time so as to try and prevent similar problems next time.
  6. Without seeming obsessed, it might help to sometimes discuss ones Gluten-Exposure Symptoms with those close to us as they occur.  This can be a good way of enlisting helpful allies in this struggle while also learning learning why or why not to burden others with such delicate information.
  7. Be brave enough to politely excuse One’s self in social situations when we need some Gluten-Recovery Time and/or Space
  8. When feeling really down in general about the whole Gluten thing try to recognize if any of this stuff is due to wrongfully assumed moral issues (i.e., “I deserve this suffering because I was a disobedient child”….) and dismiss it because there is no connection between morality and why one person has Gluten-Related Problems while another does not.
  9. Avoid blaming other people for our Gluten-Related problems.
  10. Practice getting support for Gluten-Related issues without broadcasting to the world about it.

  Surely there are other things one can try and do to firm up our skills and abilities for taking care of our Gluten-Related needs.  Peer pressure and even simple glances or noises from unknown but present strangers can often keep many of us from doing what we need to do in order to stay healthy.   And it is really just not worth it.  It is not worth being sick for a day just because one was too shy to ask the clerk at Burger King to please serve me my Whopper without a bun.  After all, their slogan used to be, “Have it your way!”

  We can each probably think of situations where we sacrificed our own good for others.  And I am all for that.  There are also situations where One’s need to keep confidential their health-related needs is important (such as in work situations where there is outright fear and/or hatred of the “sick”, or simply discrimination based on perceived health issues at school, work, commerce, or socially).  This is very unfortunate.  But also, unfortunately true in our world today. 

  It is a simple case of 5 Natures

  1. Naturehas given us Celiac Disease.
  2. It is Natural for other insecure human beings to fear illness in other human beings; while
  3. Hatred, Prejudice, Discrimination, and Opression of persons with Celiac Disease or Gluten Sensitivity may be common, but it is NOT  Natural.
  4. As we cope, survive, and develop it is our Natureto actively (or passively) flush away cruel and foolish pressures in order to include and accommodate environmental stimuli which are much more conducive to our Natural ultimate goal of thriving.

  Thus, if it is a case of avoiding a small amount of perceived/assumed (i.e., possibly not even real) social scrutiny from a stranger or to; versus avoiding Gluten-Exposure — I think I should choose my physical and mental health over the former.

  Perfectly natural, don’t ya think?

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Posted in 100 Ways to G-F Simplicity, G-F PsychoBabble, G-F Simp. Philosophy | Tagged: , , , , , , | Leave a Comment »

Crohn’s Scholarship Funds, Football Players, and Personal Grief

Posted by nepeht on November 21, 2008

  There is a fund that awards higher education scholarships to persons with Crohn’s Disease.  Great!!! http://www.crohnsandme.com/.  Now, we need a whole bunch more of these, ok??? Pretty please!!!

Small Change (c.2008, WTB)

Small Change (c.2008, WTB)

  It was about 1981 when I was first diagnosed with Crohn’s Disease.  I have had numerous surgeries.  I survived an era where I was constantly denied health insurance (and consequently much needed health care and medications) as well as employment due to this disease.  I was also not eligible for any sort of disability coverage.  This has changed very slightly over time.  More than a thousand times, I have counted on change to make things happen.   And I mean change in two ways: as coins or funding; and as in someone making a difference.  I am grateful to David Garrard for that.  No doubt, his donations will make a great difference.  One can see the obvious hope and encouragement Mr. Garrard’s commercials have provided for certain people living with Crohn’s Disease.

  In 2003, I finally received my Ph.D. in Social Work from a very good university.  I owe about $175,000.00 for that education.  I still see discrimination by insurance companies, employers, and Government Benefits Policies due to Crohn’s disease.

  On one hand, I am very happy to see a football player do so well at his profession while also outing himself about Crohn’s Disease.  I am also Thrilled and Grateful to find there is a scholarship to help persons with Crohn’s Disease get educated.  Lord knows this is needed as Crohn’s often hinders ones ability to do physical work and to be educated is often a key to learning to work with ones mind instead.

  On the other hand, I am deeply saddened because there is a very long ways to go before people with Crohn’s Disease are given the help and compassion that they truly deserve.  In my condition, since about 21 years of age, I could not even consider playing football, or any other rough activity.  Now after living over half my life this way, I kind of grieve the fact that I could never have qualified for a physically demanding job like football or a career with great benefits like the Armed Forces.

  So, it is a celebrated fact that a Football Player with Crohn’s has gone public.  But with all due respect and a lot of gratitude, I am still waiting for other shoes to drop.  For one, I certainly hope that a whole bunch of prospective football greats with Crohn’s Disease will carefully consult with their doctors before they go out for the team this year.

  Above all, I pray that this type of good work continues and that some day a diagnosis of Crohn’s Disease will not mean anything (socially, financially or pathologically) like it did just three decades ago.

  And last, but not least, given some of the research findings I have read recently, I hope that people with Crohn’s Disease will consider going on Gluten-Free Diets.

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