Gluten-Free Simplicity

Useful Info, Tasty Anecdotes and Simple Recipes for Attaining Gluten-Free Simplicity

Posts Tagged ‘Hating the sick’

Way #29: Accept the Basic Nature of those Gluten-Related Symptoms and Make Way Through the Societal Fog Toward Gluten-Free Simplicity

Posted by nepeht on December 21, 2008

Way #29: Accept the Basic Nature of those Gluten-Related Needs and Symptoms and Make Way Through the Societal Fog Toward Gluten-Free Simplicity.

  Let us try to think of a situation where Social Pressures kept us from doing what we needed to do regarding our Very Real Gluten-Related Issues or Symptoms. 

 What was it like?  Probably like many people — like me too, there are often regrets to deal with later due to earlier actions that were taken more in the interest of social norms than self.

I am Beautifully Unique like a Precious Orange Flower (c.2008, WTB)

I am Beautifully Unique like a Precious Orange Flower (c.2008, WTB)

  Here are a few ideas that might help one move more smoothly through these situations:

  1. Develop ways of quickly recognizing Gluten-Related Needs in given situations.
  2. Learn to rapidly recognize Gluten-Related Symptoms as soon as possible.
  3. Design and modify (as needed) a positive Gluten-Exposure prevention and recovery plan that works for you.
  4. Try to avoid situations where we are likely to be exposed to Gluten yet there is no foreseeable remedy or recovery plan.
  5. Actively learn from symptoms and situations that could not be avoided this time so as to try and prevent similar problems next time.
  6. Without seeming obsessed, it might help to sometimes discuss ones Gluten-Exposure Symptoms with those close to us as they occur.  This can be a good way of enlisting helpful allies in this struggle while also learning learning why or why not to burden others with such delicate information.
  7. Be brave enough to politely excuse One’s self in social situations when we need some Gluten-Recovery Time and/or Space
  8. When feeling really down in general about the whole Gluten thing try to recognize if any of this stuff is due to wrongfully assumed moral issues (i.e., “I deserve this suffering because I was a disobedient child”….) and dismiss it because there is no connection between morality and why one person has Gluten-Related Problems while another does not.
  9. Avoid blaming other people for our Gluten-Related problems.
  10. Practice getting support for Gluten-Related issues without broadcasting to the world about it.

  Surely there are other things one can try and do to firm up our skills and abilities for taking care of our Gluten-Related needs.  Peer pressure and even simple glances or noises from unknown but present strangers can often keep many of us from doing what we need to do in order to stay healthy.   And it is really just not worth it.  It is not worth being sick for a day just because one was too shy to ask the clerk at Burger King to please serve me my Whopper without a bun.  After all, their slogan used to be, “Have it your way!”

  We can each probably think of situations where we sacrificed our own good for others.  And I am all for that.  There are also situations where One’s need to keep confidential their health-related needs is important (such as in work situations where there is outright fear and/or hatred of the “sick”, or simply discrimination based on perceived health issues at school, work, commerce, or socially).  This is very unfortunate.  But also, unfortunately true in our world today. 

  It is a simple case of 5 Natures

  1. Naturehas given us Celiac Disease.
  2. It is Natural for other insecure human beings to fear illness in other human beings; while
  3. Hatred, Prejudice, Discrimination, and Opression of persons with Celiac Disease or Gluten Sensitivity may be common, but it is NOT  Natural.
  4. As we cope, survive, and develop it is our Natureto actively (or passively) flush away cruel and foolish pressures in order to include and accommodate environmental stimuli which are much more conducive to our Natural ultimate goal of thriving.

  Thus, if it is a case of avoiding a small amount of perceived/assumed (i.e., possibly not even real) social scrutiny from a stranger or to; versus avoiding Gluten-Exposure — I think I should choose my physical and mental health over the former.

  Perfectly natural, don’t ya think?

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Way #23: Becoming the one Noted “Special” Person in a crowd does NOT Necessarily help one Attain Gluten-Free Simplicity.

Posted by nepeht on December 18, 2008

23. Becoming the one noted “Special” Person in a crowd does NOT necessarily help one Attain Gluten-Free Simplicity.

  Be careful NOT to ALWAYS become a “special” person in crowds due to your need to be Gluten-Free.  One might want to only consider doing so in “SAFE” circumstances.

  While it is important that commercial vendors disclose to potential customers whether or not their products contain certain common allergens; it is not necessarily important for a person with a Gluten-Related Health Condition to disclose such with anyone in particular, unless there is a “need-to-know” in that situation. 

  If one looks, one can see the anger around such issues within our culture.  For example, in a situation where a very large commercial vendor failed to do so, they were then frustrated by a subsequent lawsuit.  Afterwards, in a blog, a third-party person expressed anger at the plaintiffs seemingly thinking that Gluten-Related Allergies are a chosen condition.  This blogger actually wrote that it was the fault of the consumer who was exposed to gluten.  And then finally, another blogger slammed back at the former blogger in defense of his family member who has a Gluten-Allergy.  

  It is fascinating to me (not necessarily in a good way) how Americans (and probably many others) seem to be so insensitive toward people with very real medical conditions.  In 1994, there was an article in The “Humanist” Journal titled, “Hating the sick; health chauvinism and its cure“.  In this article there are examples of how people with medical conditions are discriminated against and even suffer violent attacks in supposedly otherwise civilized societies around the Globe. 

  It is largely for this reason that one should be very careful NOT to disclose things about her or his health to just anyone.  It is probably best to avoid having ones health condition(s) verbalized to a crowd.  There are lots of other reasons also, largely having to do with often benevolent prejudices persons (even family) might form about persons with certain illnesses…. or certain needs.

  I am not saying, “TRUST NOBODY!!!”  NO!!!  That’s not it.  I am saying be careful.

  And one way to live carefully would be to avoid becoming that “Special” person in a crowd with the “Gluten allergy.”  Yes, of course one needs to eat safely and avoid Gluten.  But there are many ways of doing that without having it become common knowledge.

  Now, that’s one side of the story.  The other point I am trying to make here is that sometimes knowledge about ones health condition or allergy can become a burden to self and others.  There are many cases where one can eat happily and safely without anyone around them having to know about the Gluten thing.  This is where is might help one to develop some skill.

  Who can one tell?  Who should one not tell? 

  These are questions best answered by each of us individually.  There may be great risks involved.  And these include both negatively-motivated risks such as anger or discrimination against a person for having an illness.  Or this could include positively-motivated risks such as good friends and loved ones bending over backwards to serve a gluten-free meal only to find it is much much much much much more difficult than presumed and then feeling guilty that they could not pull it off. 

  Another type of risk here is when a loved one — like a life partner modifies and self-educates in order to help you be Gluten-Free, but then their heart is broken the day that you got weak and had a Gluten-Relapse right in front of them.

  In no way could I suggest that ones Gluten-Related needs should stay a secret.  It is just that these are very serious needs and this condition effects the whole person — including the biological, psychological , social, economic, vocational and perhaps even the spiritual parts of us. 

  With a condition that serious, every person in a crowd does not need to be involved.  Only those who need-to-know, really need to be involved.  And hopefully, among those who need-to-know will be very special people who are either professionally capable of dealing effectively with the situation or they are persons whose fondness and maturity is such that they both put effort in that they feel like contributing; while also they can have patience and humility enough to understand that Gluten-Related conditions such as Celiac Disease are all too often really really really big in a given lifetime and while the effects of caring can be miraculously wonderful; they can also seem to be nil.  And this is because like everyone else, we have good days and we have bad days.

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